September 2023

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Congenital Muscular Dystrophy (CMD) affected individuals Kelly Berger and Avery Roberts are making their voices heard. Together they hope to tackle misconceptions surrounding disability and give a loud voice to the oft-forgotten rare disease community. CMD is a rare genetic disorder which causes the muscles to break down faster than they can repair or grow, which leaves Berger and Roberts to rely on wheelchairs as their main source of mobility and independence.

Posted on 9/12/2023


Latest Comments

8/24/2023 | Jan Kerr
We already have 5 copies for our accessible self catering lodes…another one would be fabulous.

8/24/2023 | John A, LeBlanc
I teach PE at an elementary school. I would love this book for my gym library!!

8/24/2023 | Nancy LeBlanc
My daughter (wheelchair user) works at a children’s museum and these would be a wonderful additio...

8/24/2023 | Mary Hemby
I am a polio survivor and have been using a power wheelchair for over 20 years now with post poli...

8/24/2023 | Heather Hooper
My son is a full time wheelchair due to Friedreich's Ataxia. I'd love for him to read some encou...

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