Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Two Affected with Congenital Muscular Dystrophy Strive for Rare Inclusion

Congenital Muscular Dystrophy (CMD) affected individuals Kelly Berger and Avery Roberts are making their voices heard. Together they hope to tackle misconceptions surrounding disability and give a loud voice to the oft-forgotten rare disease community. CMD is a rare genetic disorder which causes the muscles to break down faster than they can repair or grow, which leaves Berger and Roberts to rely on wheelchairs as their main source of mobility and independence.

Posted on 9/12/2023


How Many Wheelchairs Are Enough?

How Many Wheelchairs Are Enough?

Six years ago, my 49-year-old wife, J., survived a severe hemorrhagic stroke that left her with limited ability to control her arms and legs. This event started a complex and often frustrating journey figuring out how to help her exist in this new reality. One major area of concern throughout has been mobility, which prompts the question, "How many wheelchairs are enough?"

Posted on 8/29/2023


7 Children's Books Featuring a Character with a Disability

7 Children's Books Featuring a Character with a Disability

As I grew older and the World Wide Web became much easier to access, I began my search for all the books focusing on characters with a disability that I could get my hands on. In fact, I even wrote one myself, so that no other kid in a wheelchair would ever have to grow up not seeing themselves represented in a storybook character. Here is a list of seven children's books that have a main character with a disability.

Posted on 8/15/2023


Disability and Infertility

Disability and Infertility

Living as a person with a disability has its challenges. As a result of a motor vehicle accident in 2003, I am a T-12 incomplete paraplegic. Over my many years as a wheelchair user, I have generally figured out ways to make things work for my specific needs and have done my best to prepare for what life throws at me. However, when my husband and I decided to have a baby, I was absolutely unprepared for what I would unknowingly go through.

Posted on 8/1/2023


The Joys: Life with My Special Daughter

The Joys: Life with My Special Daughter

The reason I write is to help others. When I started out on this journey with my baby, I was young at age 23. I would have loved to have blogs from other parents and caregivers. The more advice, the better. That doesn't mean I would have had to use it all, and neither do you. But if even one thing helps you, then I have met my purpose. I hope all of you will use this piece of advice: focus on the joys!

Posted on 6/23/2023


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Latest Comments

8/24/2023 | Jan Kerr
We already have 5 copies for our accessible self catering lodes…another one would be fabulous.

8/24/2023 | John A, LeBlanc
I teach PE at an elementary school. I would love this book for my gym library!!

8/24/2023 | Nancy LeBlanc
My daughter (wheelchair user) works at a children’s museum and these would be a wonderful additio...

8/24/2023 | Mary Hemby
I am a polio survivor and have been using a power wheelchair for over 20 years now with post poli...

8/24/2023 | Heather Hooper
My son is a full time wheelchair due to Friedreich's Ataxia. I'd love for him to read some encou...

How to get funding for your assistive technology